Category: Uncategorized

Dory Dog

Well, she’s been with us a year and two months and she is FINALLY showing signs of calming down.

She was a year old in May, so she still has a lot of puppy left in her, but brief moments of calm are starting to show through. THANK GOODNESS!!

A snap shot of Dory asleep on the front porch, as seen through the window on the door.

Mim Gets His Wheels

Three photos of Mim on his bike with his instructor Jeff running along side.“Gimmie some wheels if I can’t have wings.” – Suzy Boggus

Mim learned to ride a two wheeler last week. Special thanks go to Jeff and the crew at Pediatric Physical Therapy, Inc. Yes, I paid someone to teach my son how to ride a bike.

Fish is quiet, but gutsy. Her ski instructor named her “White Lightening” in honor of her lust for throwing herself down a mountain at full speed. Mim is outgoing, but fearful of trying new things. I’m impatient. I work hard not to force him to do things he can’t do, but I also push him to work through his fears. I do it because I know he can do these things and because when he does push through, his smile could power New York City for a week.

When it came to teaching him to ride a two wheeler, he had multiple willing instructors, me, his dad, his sister and his awesome Auntie Jennie. No go. He’d freeze, his body would go stiff and he’d topple. He’d beg for his training wheels.

When I got wind of bike camp, I was all about signing him up, but only if he was willing. His Dad and I talked to him about it and made the offer to send him. He said yes. We told him he didn’t HAVE to go, but that if he wanted to learn to ride, we’d send him. We also told him that if he did go, we expected him to give it his all. He said yes.

He was nervous, but with Jeff’s help and the help of the other volunteers, he worked through it and by the end of day two, he was riding independently.

YAY MIM!! I am so proud of you, but more importantly, you are proud of yourself.

An Eggciting, Eggasperating, Eggsperiment

It was spring break and the kids announced they wanted to make chocolate chip cookies. Who am I to stand in the way of the production of sweets????

A quick inventory of ingredients revealed we were out of eggs. Most normal people would just run to the store and grab a dozen. If you know me or you’ve been reading this blog for any length of time, you know, I’m not “normal people”. I’m an egg snob and I blame my neighbor Cammy. Cammy keeps hens and is very generous with her eggs. It is hard to describe to someone the difference between a mass produced egg and locally raised, fresh egg. A fresh egg is just, well, eggyier, but not in a bad way, it just has a deeper, richer flavor. It is a mild infusion of taste, but once you’ve had it, you’ll never go back to regular eggs. It is sort of like the difference between a handmade chocolate and a Hershey bar.

I could have gotten in the car and taken a ride to Cam’s, but it was a beautiful day and I was looking to get some exercise and spend some time with my daughter. So, we decided to perform and eggsperiment. We hopped on our bikes and pedaled away.

two half a dozen eggs cartons stack one on top of the other with a red dishtowel for paddingCammy lives about 2 miles away, and I was looking for a bit more exercise, so we took a roundabout route to her house. Upon arrival at Cammy’s we discovered a dozen eggs wasn’t going to fit in Fish’s bike basket. Carefully I ripped the cardboard container in half and we snuggled the two halves in a dishtowel I’d brought along for padding. Then we were off for the quick two mile ride home.  Or so we thought.

Fish on her bike, starting, going, gone

 

Eggcept when we went to turn on our road, we encountered this.

Bright orange sign that says "Road Grading Ahead" and a shot of the road being rakedFor my city slicker readers, dirt roads are riddled with divots and pot holes eggspecailly during mud season and after days of rain (which we’d recently eggsperienced). The town comes through and turns over the dirt with a tractor pulling a eggceptionally large blade on an angle, then they go back over it with another eggceptionally large rake. The result is a surface that is loosely packed dirt and gravel. Great for cars and trucks, but when you are riding a bike a newly graded road is like slogging through taffy. It is bumpy, large rocks appear out of nowhere and the loose surface makes for slow traveling. It is hard enough on a regular ride, nevermind one involving eggceptionally fragile cargo.

Rather than risk further eggasperation, we turned around and rode back the way we came. Well, we modified the route a little to avoid some hills that were fun as down hills, but looked pretty miserable as up hills.

half a dozen eggs resting comfortably in the dirtAll was well, until we once again reached the dirt. Half of our passengers decided to make their escape. Ooops. Amazingly, they all survived the drop without a scratch.

So, one hour and 10.5 miles later, I got my eggcercise and we had eggs for cookies. Ah, such is the adventure of life in the country.

 

Joy

 

My kids running down towards a playground at the other end of the shopping center

I love this picture. The lighting is poor and it is blurry because they were moving and I took it with my phone, but still, it captures that joy that is my children.

We’d just finished dinner at a local diner and after a quick stop for new sneakers, for the men of the family, the kids were told we could visit the playground at the other end of the mall. They took off squealing.

They like each other. Yes they get on one another’s nerves, but generally, they like each other and play well together. I am blessed. I know it may not last, but I hope it does. This is the reason I wanted two kids.

Sorry to have been absent and a warm welcome to anyone visiting from Parenting New Hampshire. More to come soon!

 

The beginning of a new era at Starbucks and the end of an artform


A venti Starbucks black iced tea with 3 pumps of sugar. There is a label rather than the details being written in Sharpie

This cup, this, venti, black iced tea with 3 pumps of sugar*, is the beginning of a new era for Starbucks.  The barrista who served me referred to it as a move towards “mass production”.

Out with the quaint hand scrawled “Bk 3p CS” and in with the block  type,

Vt Icd Bl Tea Shkr 3 Classic Syr

Blah.  The  barrista said the new system isn’t as personal as the old one and I agree.  Occasionally, I’ll take the kids for a treat.  The staff knows us and they would frequently add a 🙂 to my daughter’s KHC (Kid’s hot chocolate, smaller, not as hot). It was easy to do because the sharpie was already in hand, but that little extra touch was always noted and appreciated.

I’m sorry to see the scribbles go.  I suspect, it all has to do with efficiency but, given a choice, I’ll take the personal touch over efficiency any day.

*FWIW, 3 pumps is HALF the standard amount of sugar.

NH Skates for NOAH

Pictures of me as a baby and a pre-teenI have albinism. Most people are more familiar with the word albino. Albinism is a genetic condition that causes a lack of pigment in the skin, hair and eyes. I can legitimately say I am not wired according to diagram. The nerve pathways from my eyes to my brain are not the normal 50/50 split like most people, they are more like 80/20 favoring my left eye. This means I only see out of one eye at a time. Due to my lack of pigment, parts of my inner eye didn’t develop correctly, add that to my astigmatism, and photophobia (sensitivity to light) and my vision just isn’t all that great.

My response to all this is yeah, so what? Big deal. Remember, this is my normal. I have always seen this way. I know nothing else. This is also a response developed over many years and after conquering many barriers.

I was raised in a loving supportive home. When the doctor gave my mother the diagnosis, he said I’d be blind and not to expect a lot from me. Fortunately, she ignored him. She encouraged me find my own limits and disregard the limits others placed on me.

It wasn’t always easy. Kids can be so cruel. I looked different and I acted differently. I was teased mercilessly. They called me Snow White, Casper and The Pop ‘N Fresh Doughboy. On the bus in middle school, they would steal my hat and play keep away. When you combine bright sun light streaming in the windows and a small item changing locations quickly, I lost a lot of hats.

In eighth grade, I finally had the opportunity to meet someone else who looked like me. I met Jan, an adult woman with albinism. It was a life changing experience. I realized it wasn’t just me; I was not alone and it was going to get better.

Jan, my mom, myself and four others founded NOAH, the National Organization for Albinism and Hypopigmentation. I’m passionate about educating people about albinism. Children continue to be diagnosed and parents don’t always get accurate information they need. In developing countries, albinism is akin to a death sentence. For example people with albinism in Tanzania are slaughtered because in that culture, it is believed an albino’s blood, hair and bones can be used in potions that will make people wealthy.

For me, having albinism isn’t a big deal. Others with the condition face greater challenges. Some are ostracized by family, made to feel less-than and incapable. They don’t get the support they need emotionally and in their education to become successful, self-sufficient adults. I know first hand that the work NOAH does to educate parents, professionals and those living with the condition is vital to improving lives today and ensuring that future generations will be raised to be independent and successful.

Like most non-profits, NOAH produces a newsletter, and educational materials that are available in multiple formats and languages. There is also a web site that offers an online forum where people can ask questions or share experiences and receive feedback in real time. NOAH maintains a list of rapid responders around the country who can be in touch with people who are newly diagnosed to provided information and support. Every other year, NOAH hosts a national conference. Last July almost 1000 people descended on our Nation’s Capital to learn about the latest about genetic discoveries and low vision aids as well as share experiences.

This summer, NOAH will hold its 5th annual family camp. This year, camp will be offered in two different locations. Camp is a place where kids with albinism, just get to be kids. Indoor activities are scheduled at peak sun times and swimming takes place in the evenings. There are rock walls paddle boats, zip lines, archery and fishing. Kids bunk with counselors (most of whom have albinism or are directly related to someone who does). Parents have time to connect with other parents and watch their kids thrive. The experience is far more social than education, and yet much is learned in a very short time.

Three girls with albinism and one unaffected sibling and Fish scaling a rock wall
At NOAH Camp the unaffected siblings are the minority & Fish climbs her first 50 foot rock wall, she was so proud of herself

I’m great at doing on behalf of NOAH, I’ll write an article, make a phone call or speak on a panel. The one area I seem to falter is fundraising. I think it is because of my outlook. I don’t think having albinism is a big deal, the people around me know it isn’t a big deal so I’m loathe to ask for money for something that “isn’t a big deal”. Yet if I stop and think about it, it took a lot of work by a lot of people for my perception of albinism to develop to the point where is wasn’t a big deal. My mother knew nothing when I was diagnosed. There was no early intervention. There was no Internet. She asked questions and talked to eye doctors, teachers for the visually impaired and classroom teachers. She watched me an synthesized the information and made decisions. Was she always right? No but she had a pretty high average in my opinion.

Mim and his buddy M yuckin' it up.
Mim and his buddy M yuckin' it up.

Now I am a parent to two children who also have albinism. I can’t imagine what it must have been like for her to negotiate all this with little or no support. I know what is going on and still I bang my head against a wall. NOAH was founded so others wouldn’t have to walk this road alone, so parents could have information at their finger tips. So people with albinism could meet others with the condition sooner rather than later.

We’ve accomplished a lot, but there is more to be done. The condition is genetic so there is not “cure” and there are always new people being diagnosed. There are so many we haven’t reached because of distance and funding.

The fact that having albinism isn’t a big deal is attributable to my mother and NOAH. My mom set me on the right path and NOAH has introduced me to others with similar experiences who continue to educate me and enrich my life to this day.

Our family is hosting a skating party for NOAH this weekend. If you are local, please join us. If you can’t make the event but still want to support the NOAH, visit our fundraising page to make a donation. NOAH is a registered 501(c)3, so your donation is tax deductible.

While I have it good, it is vital that NOAH continues to educate and raise awareness so that others can experience independence and self-fulfilling lives. Your support is much appreciated.

Time to change

I went to the doctor on Monday. Nothing scary, just an annual check up. The number on the scale was U G L Y, ugly! I never managed to shake the pregnancy weight gain and in the years since the kids were born, I’ve only gone up. I’d been holding steady until recently. I knew I’d gained some weight, but I didn’t think it was THAT much. See, I sort of have this denial thing going on. I look in the mirror and see a woman who is overweight, but doing ok. Then recently I’ve seen myself in pictures and I swear my thought pattern was “wow, the camera really does add 10lbs.” Guess what, it’s not the camera goober! Ooops.

It is time for a change.

Monday was an awful day for eating. It was stressful and I was on the go from 7am to 7pm. In the midst of it all I had 10 minutes before I had to be at my next appointment and I zipped into a shopping center passing the Starbucks and heading to Staples. I bought a funky composition book and some new pens, my new food journalling tools.

See here’s the thing, I don’t DO diets, I like food too much (well DUH!). No, I mean I can’t do boxed meals or canned shakes. A – I’m committed to eating fewer chemicals and B – YUCK!! I am a picky eater. I like full bodied food with flavor. Clearly, I’m just eating too much of it. The whole measuring EVERYTHING and counting points sounds stressful. I don’t want short lived change, I want to make wholesale lifestyle changes.

My hope is to write down everything I eat and how I’m feeling and see where and when I can realistically make cut backs. Let’s face it I am not giving up chocolate forever, but perhaps I can make better choices. Once I have a few weeks recorded, I’m going to make an appointment with a nutritionist to get an expert’s opinion.

Monitoring food intake and cutting down on sweets, are obvious steps but the other component of my plan is to increase my exercise. To that end, my crazy neighbor is already offering her support. She convinced me to sign up for the Renegade Playground 5K Mud Run.  Thus far, the Weasel/Whippet team is fielding 13 contestants and the chatter on Facebook is already beginning as Coach Becky encourages us all to train. There isn’t a description of the course on the site, but as best I can tell it is a 5K combined with mud, tunnels, mud pits, obstacles, mud baths, and did I mention there will be mud? My goal is just to finish. I don’t care if I’m dead last for my wave, if I complete it, I’ll be happy.

I got out today and started Couch to 5K (C25K) a running program that starts slow and builds your endurance until you can run the full 3+ miles. There’s even and app for that :). I grabbed the C25K app from Bluefin software from iTunes. It tells me when to switch from walking to running and allows me to play songs from my iTunes library. I plan to alternate C25K with EA Sports Active on the Wii. I might even throw in a few bike rides just to keep things interesting.

I’m nervous, I’m not a particularly coordinated person but, I need something to work towards because while I’ve been exercising for months, it just hasn’t been enough. It is time to put it all together and get healthy once and for all. I’m excited because most of the others on our team don’t run regularly either and while I’m sure there will eventually be some trash talk, for now, we are all cheering each other on. We have one ex-military guy, so he’ll sail by us, but that’s ok, because someone has to do us proud.

Wish me luck!

Three photos showing me overweight
The BEFORE Pictures

NHMilk.com made me a milk snob

cute little milkphoto © 2006 hobvias sudoneighm | more info (via: Wylio)When we lived in Waltham, Mass, we had our milked delivered by Crescent Ridge Farms. When we moved here to New Hampshire, I went back to purchasing my milk at the grocery store.

I was exploring the Concord Farmer’s market last summer, when I found Catamount Farms. Oh to have milk in glass bottles, delivered to my door again. I brought home samples of the 1% and the skim. Heaven. One sip and I was hooked. I was like a junky. I had to have my fix on a weekly basis. Thankfully Catamount farms happily obliges.

Catamount farms is based out of the Chichester Country Store on Route 28 in Chichester, they deliver fresh milk from Sherman Farms Dairy in Conway, NH  along with products from Stonyfield Farms and other New Hampshire companies.

Catamount farms delivers all over central, Southern, and Eastern New Hampshire.

Visit their website to determine if they service your town. Select the products you want delivered and the appropriate interval for your family (weekly, bi-weekly, monthly). You can set up a one time delivery or a standing delivery. During the warmer months, I leave a cooler with icepacks outside. Jerry leaves me a milk crate for my empties and everything is billed to my credit card.

Typically we polish off one and a half to two gallons of milk a week. It helps, that neither my husband or my daughter is able to drink milk (I have to by Lactaid for them). This is a purchase based on value and quality, not price. As of this writing, a half gallon of milk is $3.65 plus a refundable $1.50 bottle deposit plus a $3.50 charge per delivery. That is almost double the cost per gallon of milk bought at a chain grocery store, but there is no comparing when it comes to quality. When most people think of skim milk they think of a blue tinged, watery, tasteless liquid. I even have a friend who refers to skim milk as “jelly bean juice”  Not Sherman Farms skim milk! It is more like a store bought 1%. It has a solid white color and a nice full flavor. The 1% has even more depth oh and the seasonably available egg nog is to die for!! Thick and creamy, it is a dessert unto itself. I’m planning on buying some of their chocolate milk to use as hot cocoa on Christmas morning.

For me, this is about knowing where the milk comes from and making healthy choices for my family. It is about purchasing a quality product, and supporting local businesses.

Try some, you won’t regret it!

These words are my personal opinion. I am not affiliated with Catamount Farms or Sherman Farms Dairy. I did not receive any compensation for this post. I simply want to spread the word about two great companies and a wonderful product.

My Infertility Story Part I

This post is a follow up to an earlier post I wrote about at Self Magazine article on how isolating infertility can be.  I was blessed to have a circle of friends who had experienced similar situations. NO ONE should feel alone in the infertility process.

12 Week  Ultrasound 4photo © 2009 Marty Bonner | more info (via: Wylio) I knew I wanted kids, plural.  I always told my husband, if there was one, there would be two.  I was open to discussing no children, but I was an only child and I really wanted my own kids to have a sibling.

I’d been on and off the pill since I was 17.  Basically when I had insurance or was in a relationship, I was on the pill.  Even on the pill I could go months without a period. I was young and didn’t think much about it.  On occasion, I discussed my lack of menses with my doctors, but none seemed overly concerned, so neither did I.

Fast forward, I’m married to a wonderful man, we have purchased our own home and are looking to start a family.  Suddenly, my lack of periods was an issue.  We “tried” in earnest for while, but it wasn’t long before I started researching fertility issues. What can I say, I am an impatient control freak. I purchased Taking Charge of Your Fertility and set about educating myself.  I tracked my basel temperatures and there was no discernible pattern.  There was no jump in the graph, the temps were all over the place, seemingly random.

I had friends who were facing similar challenges.  One had suffered an ectopic pregnancy that all but ended her hopes of conceiving. She adopted domestically.  Another had a family history of infertility.  She did some initial testing and knew treatment was a futile course. She adopted from Internationally.  I was so blessed to have their counsel.

I sought out an infertility evaluation.  We lived in Massachusetts and were fortunate that insurance covered all the testing. We ruled out male factor immediately so, the problems were mine (Oh, the self imposed guilt!).  The first specialist I saw was a male with a very heavy accent (I can’t even remember where he was from).  He planned a course of treatment that went almost directly to IVF.  I felt intimidated and pulled back sharply.  I opted for a second opinion and was glad I did.  This doctor was in the same practice, but a different office.  Her excellent reputation manifested itself in a ridiculously long wait for an office visit.  A wait that let me get very clear about what I wanted and how far we were willing to go to get it.  My husband was awesomely supportive throughout this.

When we did finally see her, she had a much calmer manor and measured approach.  She did some blood work and ruled out PCOS (this is relevant later), but still there was no cause for my irregular periods that were making it hard to predict ovulation.  She also ordered a hyserosalpingogram or (HSG).  Here is where having the support of friends who have been through the process is invaluable.  My friend J, told me to take ibuprofen before the test. I got the go ahead and took 800mg about an hour a head of time.  An HSG is NEVER fun, but it really didn’t bother me that much.  J took me to the test and was stunned that I wanted to go out shopping afterwards. “I just wanted to curl up in a ball after mine”.  The HSG revealed no blockages, so, we kept on.

We “practiced” regularly, but apparently not at the right time because I still wasn’t pregnant and I was growing more frustrated by the month. I felt like I was failing.  Failing the most basic task for a woman.  I couldn’t even BLEED right for cripes sakes.  My husband was my rock assuring me that he loved me despite my challenges.  My friends were there to lament the arrival of my period AGAIN. Still, it sucked.

By this time, I was taking Clomid and due to my lack of conception, we progressed on to injections.  At one time, I knew this process cold and could have told you want I was injecting, and the dosage, but in the chaos of the last 10 years, that information has completely evaporated from my brain.

So, I went for my daily ultrasounds, the one’s where they stick their “magic wand” in your nether regions and take a peek and what is going on down there.  It was during these fishing expeditions that a cyst was discovered on my left ovary. They were pretty sure it was the left side that was growing the egg, but the cyst made it hard to determine the size of the ovary which made it hard to determine when it was going to expel its precious cargo.

The ultrasound staff and the nursing staff were just amazing.  I rarely spoke with the doctor.  Word came down from on high that this month was a scratch and we’d use it as a practice month for the injections and we’d try again next month.

For the uninitiated, your partner administers the injection in your abdomen.  It is sub-dermal, so it is more of a pinch than a stab.  Then you and your partner *ahem*, practice, do the deed, bump uglys, you get the point. The injection is supposed to encourage ovulation and once ovulation takes place, you want to have the little swimmers in place to greet the freshly hatched egg.

It is such a process it can take the fun out of intimacy. Bless my husband for doing his part to keep things light.  On the occasion of my first injection, he came to our bed room with one of my lipsticks.   He then proceeded to use it to draw a target on my abdomen. “I don’t want to miss.”

I went in for my a blood test 7 days later, and it turns out his aim was dead on.  Much to everyone’s surprise, I was pregnant.

I’ve read so many great stories about how women told their spouses they were pregnant, mine is very utilitarian.  I picked up the phone and called him at work and blurted out the news. His aim was true.  Ahem, a little too true. The next day the nurse called again. My numbers were so high, they were convinced I was pregnant with twins.

OH MAH GOD!!! Anyone who ventures down the road of infertility treatment thinking they are guaranteed a single, healthy birth is naive, but still when you work so hard to get pregnant, you never think you’ll be the one who conceives two at the same time.

In a show of cosmic sense of humor, the second sac, self-terminated, and by 10 days later, we were back to just one baby.  WHEW!

I was fortunate, my pregnancy was uneventful.  I even traveled to Australia three months pregnant.  The delivery was another story, but that’s not tied to my infertility.

Next up, conceiving a second, or not.

(School)Photographs and Memories

I wrote about my school picture experiences and now it is time to discuss my kids’ school photos. As I mentioned in that post, the job of school photographer is not high on my list of dream jobs. School photographers are asked to capture photos of as many kids as possible, in as little time as possible, for as little money as possible. Not ideal conditions for creativity or high quality. Fortunately, I know this going it so I am not surprised by the results. Still, I’ve come to appreciate school pictures for what they are, a time capsule. They capture my kids where they are at this particular place and time.

I am the opposite of my mother, I DON’T fuss about what the kids wear. Trust me this makes for some interesting attire, but hey, that is an area where I can give them complete control. This policy holds true even on picture day. Fish had her picture day outfit picked out AS we were shopping for back to school clothes. Mim is more of a fly by the seat of his pants kind of kid. I was very curious to see what he would pick and pleasantly surprised with his selection

What I see when I look at her picture, is a girl who is growing up and beginning to explore her place in the world. She’s done a great job maintaing her pierced ears Now, she’s growing her bangs out, and experimenting with hairstyles. She told me about pulling all her hair to one side (oh, the memories) and I think it makes her look more mature. She’s working to find her footing. She can be shy and reluctant to stand up for herself, and in her face, I see that tentativeness (am I doing this right?), but I also see earnestness and her easy smile. Her rigid posture tells me she still wants to please and follow directions (she never sits that straight on her own) but at the same time, I do see a bit of a desire for independence. I suspect this has more do with her clothing selection.

What I see when I look at his picture, is my wiggly little boy. A boy who struggles to follow directions. Sometimes he doesn’t follow because he wants to do his own thing, sometimes (as I’m betting is the case here), he doesn’t follow because he is so excited he doesn’t stop to listen to the words that have been said. I’m sure the photographer told him to sit up straight and put his shoulders back. All he heard was shoulders, the result is the shrugged position. I love the orange striped polo, it is from Land’s End. We bought it on sale ($5 FTW!). He picked it out and while it isn’t my preference, it reflects him well. He is LOUD and vivd.

Probably the worst thing you can tell a kid is to “say cheese”, the resulting smile is usually something like what we have here. My Internet friend Firemom, taught me that asking them to say “boogers and cookies” or some other farcical quip typically generates a giggle and thus a more natural smile. But, I like his smile here because it shows he still has all his baby teeth. He talks a good game (his vocabulary would knock your socks off), but his maturity doesn’t always match his speech.

Once a year, I pick out their clothes and we go to the Target Portrait Studio. There, a photographer with only slightly more time poses them and talks with them and snaps away. I’ve recently started letting each of them bring an additional piece of clothing and an item to pose with. These are the pictures I hang on my walls.

Soon, I will find an independent, professional photographer and invite him or her into our life for an hour or two to capture where we are as individuals and as a family. In the meat time, I’ll look at the pictures I have and appreciate them for what they tell me.

The original version of this post had digital copies of the pictures included.  Then I remembered this post by Heather Sphor. I downloaded the plug-in she suggested, but found (at least on her site), that I was still able to save photos to my hard drive. I’ve posted pictures of my kids here before, but before I go whole hog on this post, I need to consider things a little more. I also need to run some more tests on the plug-in.